Primary care use among adults with eating disorders in England: a population-based cohort study using electronic health records
Article excerpt
Objectives To examine primary care contacts among individuals with eating disorders (EDs) and assess differences across diagnoses and ethnic backgrounds. Design Matched cohort study using retrospective primary care data. Setting Primary care electronic health records from the Clinical Practice Research…
Background The WHO defines self-care as ‘the ability of individuals, families and communities to promote health, prevent disease, maintain health and cope with illness and disability with or without the support of a healthcare provider’, while self-care confidence refers to an individual’s perceived ability to effectively engage in these activities. The interface between health and care professionals (HCPs) and the public is pivotal in promoting self-care behaviours, yet barriers such as health literacy deficits, professional constraints, misconceptions and disparities in self-care confidence persist.
Objective This study aimed to explore how self-care confidence, professional support and health literacy interact to influence self-care behaviours among UK adults.
Design Cross-sectional online survey.
Setting Community-based national study of adults across primary care and community care settings in the UK.
Participants Community-dwelling UK adults aged 18 years and above, including HCPs, were recruited from June to September 2024 via social media, online research participant recruitment platforms and professional networks. Participants provided demographic information including age, gender, ethnicity, employment, education, disability status and UK region. Data collected from adults aged ≥18 residing in the UK able to complete an online questionnaire in English were included. Incomplete survey responses or duplicate entries were excluded.
Interventions None (observational study).
Primary and secondary outcome measures Primary outcome: self-reported confidence in maintaining a healthy lifestyle and managing common illnesses.
Secondary outcomes: accessibility to health information, health literacy (measured using the validated WHO Action Network on Measuring Population and Organizational Health Literacy instrument, HLS19-Q12), self-reported knowledge of National Health Service guidelines and receipt of professional encouragement to self-care.
Results A total of 3255 community-dwelling UK adults (members of the general public) participated in the study. A subset of 227 participants self-identified as HCPs. Most respondents (88.5%) reported confidence in maintaining a healthy lifestyle; 91.9% felt confident managing common illnesses. Locating professional help when ill was perceived as easy (77.4%) but not evaluating treatment options (51.4% difficult/very diffcult) or mental health information accessibility (43.6% difficult/very difficult). Among HCPs, 94.7% endorsed the importance of self-care but cited patient reluctance to engage or take responsibility (64.8%), understanding (59.0%), time constraints (42.7%) and health literacy challenges (45.8%) as key barriers. In the general population, 68.6% found screening information accessible but 28.1% struggled with interpretation. Regression analyses revealed that older adults (65+) were significantly less confident in self-care with professional guidance (adjusted OR (aOR)=0.50 (0.33, 0.74), p=0.001), whereas males (aOR=1.41 (1.23, 1.62), p Conclusion This study highlights the complex relationship between professional guidance, self-care confidence and health literacy. While most individuals value and engage in self-care, critical disparities persist, particularly in health literacy and access to digital resources. Targeted interventions and strengthening the public-healthcare professional dialogue and interface will be crucial in advancing self-care as a sustainable pillar of healthcare policy and practice.